Lung Cancer Foundation of America
Next Breath
Clinical Trial Finder
Privacy
LCFA Next Breath

Your privacy

This tool is built for lung cancer patients and their caregivers. We know the questions you are already carrying are hard enough. Our privacy approach is to collect as little as possible, store nothing identifiable, and make it easy for you to clean up after yourself.

What we store in your browser

When you answer the intake questions, set filters (like ZIP code or biomarker), or star a trial for your oncologist, all of that is saved in cookies on your device so that you can come back later and pick up where you left off.

  • Your intake answers (journey stage, diagnosis type, stage, biomarker testing status)
  • Your current filters (country, state, ZIP, radius, biomarkers, gender, age, trial status)
  • The trials you have starred
  • Your recent conversation with the Next Breath Navigator (the chat sidebar) — this is stored in a separate cookie and is automatically trimmed to the most recent few messages

These cookies never leave your device unless you explicitly click one of the share buttons.

What we store on our servers

Only two things. First, standard anonymous request logs (which trial pages were loaded, timing data) with no identifier tying them back to you. Second, when you click “Create shareable link” in the saved list bar, we create a row in our database containing the filters you chose and the trial IDs you starred so that the link you generate stays short. That row has no name, email, phone number, or any identifier that links it back to you.

The “Copy link to another device” button is different: the link itself contains your state inside the URL. Nothing is stored on our servers for that button — the URL is self-contained.

When you use the “Report issue” button in the bottom-right corner, the description you type is sent to our team along with a snapshot of your current filters, selected trials, browser, and the page you were on. This helps us reproduce bugs. If you fill in the optional email field on that form, it is stored alongside the report so we can follow up directly; leaving it blank keeps your report anonymous. The checkbox for including your navigator chat is off by default — we only receive that conversation if you opt in for a specific report.

Navigator vs Educator mode

The chat sidebar has two modes you can switch between:

  • Navigator (“Find trials”) — uses your intake answers and current filters to help you make sense of your trial search.
  • Educator (“Learn the lingo”) — explains medical and clinical-trial terminology in plain language. The Educator does not have access to your intake, filters, or selections, and it will not interpret your specific situation.

Neither mode provides medical advice. Both are tools to help you prepare questions for your oncology team.

Voice mode (Arnold) — optional

You can turn voice on with the button in the chat sidebar header. When voice is on, the Navigator sidebar connects directly to OpenAI’s Realtime API over a peer-to-peer audio channel (WebRTC). You can speak naturally — the system uses OpenAI’s semantic turn detection to figure out when you’ve finished a thought, so there’s no button to push and no need to hold the space bar.

Audio never touches our server.Our backend only mints a short-lived session token; the actual microphone audio goes straight from your browser to OpenAI, and Arnold’s voice comes straight back the same way. We never see, store, or forward the audio. OpenAI’s API terms state they do not use API audio to train their models.

The assistant’s responses are also rendered as text on screen at the same time they’re spoken aloud, so you can read along or scroll back — no information is voice-only. You can turn voice mode off at any time with the toggle in the sidebar header, which fully releases the microphone and closes the peer-to-peer connection.

Who we share data with

Nobody, except the services that are technically necessary to make the tool work:

  • OpenAI— when you send a message to the Next Breath Navigator or Educator, the message (and, for the Navigator only, your intake context) are sent to OpenAI’s API to generate a response. If voice mode is on, your microphone streams audio directly to OpenAI’s Realtime API over a peer-to-peer connection (our server only mints the session token). OpenAI does not use API content to train their models (per their API terms).
  • Supabase — hosts our clinical trials database and, when you use the share button, stores the anonymous row described above.
  • Vercel — hosts the website itself.

We do not use analytics, tracking pixels, advertising networks, or any third-party script that would profile you. We never sell or share data for marketing.

Clearing your data

Because everything that identifies you is in your browser, clearing your browser data removes it. In Chrome, Firefox, Safari, or Edge, open Settings → Privacy → Clear browsing data and check “Cookies and other site data”. That removes your intake, filters, starred trials, and chat history.

You can also clear just the chat conversation using the Clear button in the Navigator sidebar header.

Shared computers

⚠ If you’re on a shared device (family computer, library, workplace), the next person who opens this site in the same browser will see your saved selections. When that matters, use a private / incognito window — nothing persists after you close it.

About the “restore on another device” link

That link encodes your intake, filters, and starred trials directly inside the URL. It is meant for you to move from your phone to your laptop, or to bookmark on a private device. Anyone who receives the URL can see what it encodes, so:

  • Send it to yourself over a private channel (a saved draft email, a personal note app).
  • Don’t post it publicly.
  • For sharing with your oncologist, use the separate “Create shareable link”button instead — that creates a short, anonymous server-backed link that’s a better fit for an email or patient portal message.

Legal context

The Lung Cancer Foundation of America is a patient advocacy nonprofit, not a healthcare provider, health plan, or healthcare clearinghouse. This tool does not operate under HIPAA and does not create medical records. It is an information resource to help you prepare questions for your clinical team, not a substitute for medical advice.

We designed this tool to minimize the collection of what Washington’s My Health My Data Act and similar laws call “consumer health data.” Where state law gives you rights to access, delete, or limit use of such data, we honor those rights by default: the data lives in your browser, under your control.

Questions

This is a v1 privacy notice for a tool built by the LCFA. If something here is unclear or you’d like to know more about how a particular feature handles your data, please contact LCFA directly through the main Lung Cancer Foundation of America website.